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Nonprofits

Displaying 121–132 of 14,198

Health
Batten Disease Support And Research Association

The Batten Disease Support and Research Association (BDSRA) is the largest nonprofit organization in North America dedicated to funding research, advancing education, providing family support services, and raising awareness of the disease and its impact. Founded in 1987, the focus of BDSRA is to help unravel the mysteries of Batten disease by bringing the worlds of science, research, and health care together toward a common goal: the discovery of treatments and cures. Programs and services are designed to connect Batten families with resources and specialized care, build networks for optimal care for patients, educate health professionals and the public about the disease, and assist families in managing the emotional, financial, and medical requirements of those affected. BDSRA's research program is a peer-reviewed grant process that focuses on cutting edge technologies and both applied and basic research, including gene therapy, enzyme replacement, and drug discovery. BDSRA also builds alliances and networks across state and federal legislative channels to raise awareness. By educating policymakers and government leaders, BDSRA adds a unified voice to advocate for research funding. As a rare, fatal, inherited disorder of the nervous system, Batten disease has no known treatment or cure. As a lysosomal storage disorder caused by genetic mutations, Batten disease primarily affects the nervous system. The disease occurs in approximately 2-4 births per 100,000 in the U.S. Early symptoms appear in childhood. There are U.S. Chapters of BDSRA in many regions across the U.S. and Canada, as well as global affiliates in Europe, South America, and Asia. All forms of Batten disease result in a shortened life span, and those diagnosed have extensive needs for comprehensive medical care. As a rare disease, Batten is severely underfunded in research and scientific studies.

Health
Alzheimers Disease Association Of Kern County

The mission of ADAKC is to improve the lives of Kern County Residents affected by Alzheimer's disease and related disorders. ADAKC takes deliberate actions aligned with its vision, that all in Kern County on the Alzheimer's journey have the help and support they need. ADAKC is steadfast in upholding its values: treating everyone with the compassion, dignity and respect of a family member and doing the right thing regardless of the situation. ADAKC’s focus is on caring for the whole-person (mind, body, and spirit) and improving quality of life. To accomplish this, ADAKC strives to remove barriers, identify and resolve unmet health needs, and engage the entire care team.

Health
Art
Ethnicity And Disease Community Empowerment Center

Our mission is to reduce health disparities in minority communities with our unique approach to patient care and community involvement. In minority communities, many patients often don’t seek care or clash with the current system because of cultural differences. We work to integrate patients on the fringe of the healthcare system through culturally sensitive health literacy campaigns, community-based health screenings and our culturally conscious health education television program. It is only through partnership with the communities in which we serve that true transformation will occur and disparities can be reduced. We believe that it is possible for everyone to obtain the same quality care and our mission is centered on making this goal a reality."

Health
HUNTINGTONS DISEASE SOCIETY OF AMERICA INC - NEW YORK - 10018-4574

The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.

Health
THE HEART OF RICHMOND AIDS SOCIETY

The Heart of Richmond AIDS Society is the only non-profit organization in Richmond that provides HIV/AIDS support and prevention/awareness services.

Health
National Stroke Association

National Stroke Association’s mission is to reduce the incidence and impact of stroke by developing compelling education and programs focused on prevention, treatment, rehabilitation and support for all impacted by stroke. NSA is part of American Stroke Association, a division of the American Heart Association.

Impact Stories
Health
National Scleroderma Foundation

The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust.

Health
National Pancreas Foundation

The National Pancreas Foundation provides hope for those suffering from pancreatitis and pancreatic cancer through funding cutting edge research, advocating for new and better therapies, and providing support and education for patients, caregivers, and health care professionals.

Health
Animals
Guide Dogs For The Blind

Guide Dogs for the Blind provides enhanced mobility to qualified individuals through partnership with dogs whose unique skills are developed and nurtured by dedicated volunteers and a professional staff. Established in 1942, Guide Dogs for the Blind continues its dedication to quality student training services and extensive follow-up support for graduates. Our programs are made possible through the teamwork of staff, volunteers and generous donors. Services are provided to students from the United States and Canada at no cost to them.