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In the fight for a DIPG/DMG cure, we help patients and families by funding game-changing research and providing navigation throughout their journey.
Brain Support Network (BSN) is a non-profit, charitable organization dedicated to three missions: 1) Providing information and support for anyone living with an atypical parkinsonism disorder (Progressive supranuclear palsy, Dementia with Lewy bodies, Multiple System Atrophy or Corticobasal degeneration) anywhere in the world; 2) Providing a support for care partners of those living with an atypical parkinsonism disorder in the San Francisco Bay Area; 3) Enabling families living anywhere in the US to donate the brain of anyone with any neurological condition (or healthy controls) to confirm the diagnosis and to further neurological research into causes, treatment options and cures.
The Fisher Center for Alzheimer’s Research Foundation is an organization that provides millions of dollars for novel Alzheimer’s research all over the world to investigate the latest, most promising research available. Our mission is to understand the causes of Alzheimer’s disease, improve the care of people living with it, and find a cure. A majority of our funding goes to the Fisher Center Lab at The Rockefeller University that was under the direction of the late Nobel laureate Dr. Paul Greengard, which is now under the leadership of Dr. Nathaniel Heintz. The Center has provided researchers around the globe with a conceptual framework for understanding the disease process and continues to be at the forefront of one day finding a cure for Alzheimer’s disease. We also fund research at NYU Langone, where a handful of clinical trials are taking place. The Foundation’s national comprehensive Alzheimer’s Information Program, the heart of which is the Foundation’s website, www.ALZinfo.org continues to spearhead efforts to increase awareness of and education about Alzheimer’s disease to the general public. The website provides in-depth information on the most current research studies, treatments, and disease management approaches. We also publish a magazine (Preserving Your Memory®) that provides readers with information about Alzheimer’s and how to take the necessary steps to prepare adequately if they or a loved one fall victim to the disease. Another facet of our Information Program is the e-newsletter, which contains updates and helpful tips. Our vision is working towards a future where Alzheimer’s is nothing but a memory.
Golden Heart Ranch (GHR) provides young adults with intellectual and development disabilities opportunities to reach their fullest potentials and enjoy meaningful, satisfying and joyful lives. We are an inclusive community where all young adults learn, work and create lifelong friendships in a supportive and caring environment.
Supporting patients and families while promoting research, education and awareness.
Established in the year 2000, the Preeclampsia Foundation is a 501(c)(3) non-profit organization whose mission is to reduce maternal and infant illness and death due to preeclampsia and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving health care practices.
Texas Scottish Rite Hospital for Children (TSRHC) is a leading pediatric care center specializing in the treatment of orthopedic conditions, related neurological disorders and learning disorders, like dyslexia. Our mission is to improve the lives of children by providing exceptional medical care, facilitating innovative professional education programs and conducting cutting-edge research in the field of pediatric orthopedics. Since our opening in 1921, TSRHC has touched the lives of more than 225,000 children, regardless of any family's ability to pay.
Bringing comfort and dignity as life nears its end.
Our Mission: To partner with the ALS community as we drive the discovery of prevention strategies, treatments, and cures for ALS; provide access to quality care and connection; and promote initiatives to improve health outcomes.
As the Drug Discovery Engine for ALS, the ALS Therapy Development Institute (ALS TDI) discovers and invents ALS treatments and partners to advance them into clinical trials. It is the first and largest nonprofit biotech focused 100% on ALS research. ALS TDI incorporates all aspects of drug discovery under one roof to find treatments as quickly as possible. Located in Watertown, MA, ALS TDI employs researchers with over 300 years of combined experience and expertise across all areas of drug discovery. ALS TDI is recognized as an international leader in preclinical and translational ALS research, and partners with pharmaceutical companies and biotechs around the world. Awarded the highest nonprofit rating – four stars – on Charity Navigator, ALS TDI spends 87 cents of every dollar raised on finding effective treatments and cures for ALS.
Cure SMA leads the way to a world without spinal muscular atrophy, the number one genetic cause of death for infants. We fund and direct comprehensive research that drives breakthroughs in treatment and care, and we provide families the support they need for today.
Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy, and support for individuals with Angelman Syndrome, their families, and other concerned parties.