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The Lymphoma Research Foundation's mission is to eradicate lymphoma and serve those touched by this disease.
The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust.
The American Brain Foundation supports vital research and education to discover causes, improved treatments, and cures for brain and other nervous system diseases.
The Foundation's mission is to raise funds to support the Barbara Davis Center for Childhood Diabetes in Denver where over 6000 children and adults from around the world currently receive the finest care available.
The National Pancreas Foundation provides hope for those suffering from pancreatitis and pancreatic cancer through funding cutting edge research, advocating for new and better therapies, and providing support and education for patients, caregivers, and health care professionals.
Since 1970, the OI Foundation has doubled funding for research every five years, for a total investment of more than $3.3 million. Funding is available for postdoctoral fellowships to encourage new investigators to begin a career in OI research, and seed grants for preliminary research. All applications are reviewed by the Foundation's Scientific Review Committee, which includes many preeminent OI researchers and clinicians. Funding also supports the OI Registry and the Linked Clinical Research Centers. The potential for results in OI research is growing, with recent advances in gene therapy, a new diagnostic test, and drug therapies under study.
At the Fanconi Cancer Foundation (FCF), we are committed to the advancement of FA research in an unwavering pursuit for better treatments, and ultimately a cure, for FA and FA-associated cancers. We offer support, education, and resources to families facing FA to help foster hope across the globe.
The Hereditary Neuropathy Foundation (HNF) is a non-profit 501(c)3 dedicated to finding treatments and a cure for Charcot-Marie-Tooth disease (CMT) and related hereditary neuropathies while providing support and extensive information for those living with CMT and their families. HNF promotes and supports innovative therapeutic driven research.
The foundation works to support people and families affected by cystic fibrosis through patient‑centered programs, financial assistance (including hardship and IVF grants), scholarships, advocacy, and research grants. Its activities focus on improving quality of life now while funding research and services that advance care and long‑term outcomes.
The Children's Tumor Foundation is a not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. NF affects one in every 3,000 people, more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. The Children’s Tumor Foundation funds critical research into neurofibromatosis. In addition to benefiting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.
The mission of the ALS Hope Foundation is to provide long-term support to: basic and clinical research programs leading to a cure, clinical centers of excellence for the care and treatment of people with ALS, support programs for people with ALS and their caregivers that optimize care and promote independence, and programs that promote education for people with ALS and physicians about diagnosis, treatment, and care.
The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers. In pursuit of our mission, the PFF is guided by the following core values: Patient-centered Urgency Innovation Collaboration Inclusiveness Evidence-based Trusted information Compassion