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Patients with chronic or life-altering diseases (such as cancer, rheumatoid arthritis, or multiple sclerosis) must fight both their illness and the financial burden it places on their family as they struggle to pay for their medications. It is estimated that over 35% of these patients have insurance but still cannot afford the co-payments for the specialty therapeutics they need to treat or control their disease, which can range from $300 to over $3000 per month for a single dose. These underinsured patients are not eligible for most free drug or patient assistance programs, leaving them with few alternatives. They may be forced to do without their medications or go into debt to obtain them, greatly affecting their health and quality of life. Our mission is to improve the health and quality of life of underinsured patients with chronic disease, cancer, or other life-altering conditions who cannot afford the medications they so desperately need.
We are a collaboration between parents, caregivers, clinicians, and research scientists. We want to transform the world of rare disease care to meet the needs of patients and their families. Our focus is the introduction of a new model of care that fosters innovative research. Health care agencies don't fund research and research agencies don't fund health care. This creates a problem when it comes to securing funding for work that can provide immediate benefits in treatment options. The Rare Disease Foundation fills the gap by providing funding to inspired clinicians and scientists for their patient-focused projects. Our goal is to support research that can directly impact the care and quality of life of a child with a rare disease. Grant requests are simplified to reduce red tape, vetted by both scientific and parent advisory panels, and funding decisions are made within 30 days of grant application to rapidly advance care solutions.
To promote; Research. Education, and Advocacy regarding Lyme and other Tick borne disorders.
The mission of Hospice of the Sacred Heart is to provide comfort, care, hope and choice to patients and their families while guiding them through their end of life journey.
Black Women for Wellness is a multi-generational, community-based organization committed to the health and well-being of Black women and girls by building healthy communities through access and development of health education, awareness, empowerment and advocacy opportunities and activities.
To empower women to make wise-educated choices and give support during their entire pregnancy journey.
to improve the quality of life of those affected by sickle cell disease by promoting advocacy, education, research and excellent healthcare delivery.
NORD represents 1 in 10 Americans who have rare diseases with programs of advocacy, education, research and patients services. It serves as the voice of the rare disease community on important issues of public policy. It also provides information on rare diseases in understandable language for patients and their families, with referrals to support groups and other helpful resources. It encourages research on new diagnostics and treatments and administers patients assistance programs. NORD mentors rare disease support groups so that they can more effectively help their members. It serves as the point of connection between the patient community and key government agencies, such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Nearly 150 patient organizations are members of NORD and look to NORD for guidance, mentoring and leadership.
The Heart and Stroke Foundation of Canada is a national voluntary non-profit organization whose mission is to improve the health of Canadians by preventing and reducing disability and death from heart disease and stroke through research, health promotion and advocacy. The Heart and Stroke Foundation of Canada is a federation of 10 provincial Foundations, led and supported by a force of more than 130,000 volunteers. For information on heart disease, stroke and healthy living, call 1-888-HSF-INFO (473-4636) or visit www.heartandstroke.ca
In 1973 as a result of the need for profound changes in mental health services the Alliance was incorporated in Los Angeles as the Coalition of Spanish Speaking Mental Health Organizations (COSSMHO). Since then the organization has grown and expanded to reflect the changing needs of the people and communities served. Today, the National Alliance for Hispanic Health is the premier science-based and community-driven organization that focuses on the best health for all. Community-based members provide services to more than 15 million Hispanics throughout the U.S. every year and national organization members provide services to more than 100 million people annually.