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NPF’s mission: “to drive efforts to cure psoriatic disease and improve the lives of those affected.”

Founded in 2004 to provide the Deaf equal access to mainstream products, services and amenities through Sign Language TV, media, music and film.

Picking Me advocates mMental health awareness and acceptance for Body Focused Repetitive Behaviors- such as Dermatillomania aka Skin Picking Disorder- for sufferers, supporters, and educational communities alike, encouraging individuals to take control back from the OCD related disorder by sharing why they are #PickingMe over their BFRB.

The mission of the organization is to enable individuals with sickle cell anemia to live lives to the extent possible unhampered and uncompromised by their sickle cell conditions, while increasing knowledge and understanding of sickle cell disease as a health problem through professional standards of administration, health care, public relations and fundraising.

1) To provide the LATEST MEDICAL / RESEARCH information and EDUCATION so that they may make wise medical decisions and continue their independence despite their vision. Provide information and research data to the medical and research community so that they may join in our fight against blindness. The AFI International Aniridia Medical Registry and Gene Bank is the main project of our research. 2) To SUPPORT the low vision / blind people born with aniridia and their families who struggle emotionally and financially due to having aniridia. To assist them in accomplishing their dreams and remain independent, self sufficient and a productive member of society. 3) To help fund RESEARCH especially the AFI created program which collects DNA samples, comphrehensive medical questionaires, and clinical photographs to add knowledge to physicians and advance research. Our international faculty of AFI Medical Advisory and Scientific Boards assist us with this program. We also help fund research and patient care services as funds allow and look forward to raising funds to expand our efforts to stop this genetic condition from continuing into future generations.. 4) To further PUBLIC AWARENESS about all the conditions that make up aniridia, and the misconceptions of people who are blind or low vision,

VBF provides support and informational resources for individuals affected by vascular birthmarks and their caregivers, and sponsors conferences, clinics, education, and relevant research.

To find treatments and a cure for the rare cancer, Epithelioid Hemangioendothelioma (EHE), by advancing research and driving collaboration between patients, researchers, and clinicians.

Talbot Hospice offers Hope, compassionate support and service to all members of our community facing end-of-life issues. We provide patient and family care, community education and advocacy while respecting both curative and palliative treatment choices.

To provide for the receipt of contributions, bequests and gifts for the benefit of fulfilling the mission of Holland Home.

The mission of Harborside Hospice is to provide quality and compassionate care to individuals and their families preparing for end of life. Our team is sensitive to the needs of each individual. Harborside Hospice recognizes that each patient is unique and each individual's desires and goals may change as end of life approaches.

Harness the power of community to innovate treatments for rare diseases, starting with UBA5.

Jack’s Corner is a nonprofit organization dedicated to improving the quality of life and finding a cure for children with SPG50 through the acceleration of gene therapy treatments, funding of research, and raising awareness of the disease.SPG50 is an ultra-rare neurodegenerative disease that affects children. The disease causes spasticity that starts in chldren's legs, slowly taking away their ability to walk. The spasticity then takes away their ability to use their hands, and ultimately, their mental capacity.