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Mission: To facilitate global collaboration and fund world-class research, medical education, and treatment trials, that make a positive impact on the lives of people with ME/CFS, Long COVID and related diseases. Vision: Significantly improve patient outcomes while advancing a cure. Goals: Our primary goals are to: frame clear disease mechanisms and models; find effective treatments and diagnostic markers; increase accurate diagnoses; and ensure access to quality care.

METAvivor is dedicated to the specific fight of women and men living with stage 4 metastatic breast cancer. At the time of METAvivor’s founding, no organization was dedicated to funding research for the disease and no patient groups were speaking out about the dearth of stage 4 cancer research. While more and more people have taken up the cry for more stage 4 research, METAvivor remains the sole US organization dedicated to awarding annual stage 4 breast cancer research.

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. • We persue the most innovative research and make sure that it receives proper funding. • We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. • We provide relentless support to families, caregivers, and healthcare providers. We will not rest until we've achieved victory - a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

Our mission is to find a effective treatments and ultimately a cure for fragile X syndrome, the most common inherited cause of autism. We directly fund research grants and fellowships at top universities around the world. FRAXA was founded in 1994 by three parents of children with fragile X. Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. It affects 1 in 4000 boys and 1 in 6000 girls worldwide, and one in 260 women and 1 in 800 men are carriers. Treatments for fragile X are likely to help people affected by related disorders including autism, Alzheimers, and many other brain disorders.

The Children's Tumor Foundation is a not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis.  NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.   NF affects one in every 3,000 people, more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.  The Children’s Tumor Foundation funds critical research into neurofibromatosis.  In addition to benefiting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.

Smile Train is an international children’s charity with a sustainable approach to a single, solvable problem: cleft lip and palate. Millions of children in developing countries with unrepaired clefts live in shame, but more importantly, have difficulty eating, breathing and speaking. Cleft repair surgery is simple, and the transformation is immediate. Our sustainable model provides training and funding to empower local doctors in 85+ developing countries to provide 100%-free cleft repair surgery in their communities. We use the “teach a man to fish” model focusing on training local doctors to perform cleft repairs in their communities. Those doctors then go on to train other doctors creating a long-term, sustainable system. Patients see their smile for the first time, parents cry tears of joy, lives and communities are changed forever. As a result of our efficiency and with the support of our donors and partners around the world, Smile Train has transformed the lives of more than one million children by giving them the power of a smile -- that's roughly 350 surgeries a day and 128,000+ every year.  

Golden Heart Ranch (GHR) provides young adults with intellectual and development disabilities opportunities to reach their fullest potentials and enjoy meaningful, satisfying and joyful lives. We are an inclusive community where all young adults learn, work and create lifelong friendships in a supportive and caring environment.

Supporting patients and families while promoting research, education and awareness.

Our mission is to honor our elders, by respecting and promoting their independence, spiritual vigor, dignity, and choice, and by recognizing that they are a resource to be cherished. As part of our mission, we accept special responsibility for the frailest and neediest members of our community who are most dependent on our care.

The American Brain Foundation supports vital research and education to discover causes, improved treatments, and cures for brain and other nervous system diseases.  

The mission of the ALS Hope Foundation is to provide long-term support to: basic and clinical research programs leading to a cure, clinical centers of excellence for the care and treatment of people with ALS, support programs for people with ALS and their caregivers that optimize care and promote independence, and programs that promote education for people with ALS and physicians about diagnosis, treatment, and care.

“Maanavseva" (Service to Humans) is a Registered Non-Profit with a mission to fight malignancies including breast cancer among rural women in Indian villages. The mission is achieved through activities such as educating, creating awareness, conducting preventive examinations and mammogram screenings and facilitating the hand-holding of rural women with necessary follow-up and treatment.Maanavseva intends to implement this mission by adopting one village at a time and conducting 100% screening of all village women as per the health guidelines and implement follow-up on a sustained basis. The short term focus is to create a successful process for a cluster of villages that is replicable and sustainable. Maanavseva will achieve this goal through conducting pilot studies in villages, identify, resolve and document the challenges involved and arrive at a workable and sustainable model. The long term focus is to expand the model to several clusters of villages through sponsorship of corporations, local bodies and other Governmental Schemes. Most prevalent cancers for rural women can be cured by early detection and appropriate treatment. If these cancers are detected early, the cost is less, treatment is less invasive, survival rates are higher and the quality of life is better. Therefore we believe that by creating awareness about these cancers and early detection through mammogram and other screenings is extremely important and is the only way to win the war on breast cancer.