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The foundation works to support people and families affected by cystic fibrosis through patient‑centered programs, financial assistance (including hardship and IVF grants), scholarships, advocacy, and research grants. Its activities focus on improving quality of life now while funding research and services that advance care and long‑term outcomes.
Supporting patients and families while promoting research, education and awareness.
The mission of the Lung Cancer Research Foundation is to support national research studies and activities focused on developing innovative strategies for better treatments, screening, and prevention of all cancers of the lung. New knowledge gained by funding scientific and clinical research initiatives will lead to more positive outcomes and improved quality of life for all lung cancer patients.
The Vasculitis Foundation supports and empowers our community through education, awareness and research.
The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust.
The Fisher Center for Alzheimer’s Research Foundation is an organization that provides millions of dollars for novel Alzheimer’s research all over the world to investigate the latest, most promising research available. Our mission is to understand the causes of Alzheimer’s disease, improve the care of people living with it, and find a cure. A majority of our funding goes to the Fisher Center Lab at The Rockefeller University that was under the direction of the late Nobel laureate Dr. Paul Greengard, which is now under the leadership of Dr. Nathaniel Heintz. The Center has provided researchers around the globe with a conceptual framework for understanding the disease process and continues to be at the forefront of one day finding a cure for Alzheimer’s disease. We also fund research at NYU Langone, where a handful of clinical trials are taking place. The Foundation’s national comprehensive Alzheimer’s Information Program, the heart of which is the Foundation’s website, www.ALZinfo.org continues to spearhead efforts to increase awareness of and education about Alzheimer’s disease to the general public. The website provides in-depth information on the most current research studies, treatments, and disease management approaches. We also publish a magazine (Preserving Your Memory®) that provides readers with information about Alzheimer’s and how to take the necessary steps to prepare adequately if they or a loved one fall victim to the disease. Another facet of our Information Program is the e-newsletter, which contains updates and helpful tips. Our vision is working towards a future where Alzheimer’s is nothing but a memory.
Our mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease.
UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and provide support to affected individuals and families.
The American Brain Foundation supports vital research and education to discover causes, improved treatments, and cures for brain and other nervous system diseases.
METAvivor is dedicated to the specific fight of women and men living with stage 4 metastatic breast cancer. At the time of METAvivor’s founding, no organization was dedicated to funding research for the disease and no patient groups were speaking out about the dearth of stage 4 cancer research. While more and more people have taken up the cry for more stage 4 research, METAvivor remains the sole US organization dedicated to awarding annual stage 4 breast cancer research.
Their mission is to provide care, support, advocacy, and education to people in Erie County impacted by serious illness and loss. Also known as Hospice & Palliative Care Buffalo.
Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy, and support for individuals with Angelman Syndrome, their families, and other concerned parties.