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Their mission is to promote early detection of brain aneurysms by providing knowledge and raising awareness of the signs, symptoms and risk factors. Work with the medical communities to provide support networks for patients and families, as well as to further research that will improve patient outcomes and save lives.
Prime of life neurodegeneration is a spectrum of relatively rare diseases that often afflict people during productive, active years and lead to debilitating symptoms and early death. They are generally categorized as frontotemporal disorders and are characterized by progressive personality, behavior, language and motor decline. These diseases create a level of functional impairment that significantly compromises the ability to carry out activities of daily living. There is currently no treatment and no cure, but there is hope. Research into these diseases may be a gateway to understanding and ultimately preventing, treating and curing more common neurodegenerative diseases like Alzheimer's and Parkinson's. CurePSP is the leading organization within this disease spectrum, providing support for patients, families and caregivers; awareness and education to healthcare professionals; and global research funding. Current research into prime of life diseases, especially progressive supranuclear palsy (PSP), is showing great promise for unlocking the secrets of neurodegeneration.
Our mission is to honor our elders, by respecting and promoting their independence, spiritual vigor, dignity, and choice, and by recognizing that they are a resource to be cherished. As part of our mission, we accept special responsibility for the frailest and neediest members of our community who are most dependent on our care.
“Maanavseva" (Service to Humans) is a Registered Non-Profit with a mission to fight malignancies including breast cancer among rural women in Indian villages. The mission is achieved through activities such as educating, creating awareness, conducting preventive examinations and mammogram screenings and facilitating the hand-holding of rural women with necessary follow-up and treatment.Maanavseva intends to implement this mission by adopting one village at a time and conducting 100% screening of all village women as per the health guidelines and implement follow-up on a sustained basis. The short term focus is to create a successful process for a cluster of villages that is replicable and sustainable. Maanavseva will achieve this goal through conducting pilot studies in villages, identify, resolve and document the challenges involved and arrive at a workable and sustainable model. The long term focus is to expand the model to several clusters of villages through sponsorship of corporations, local bodies and other Governmental Schemes. Most prevalent cancers for rural women can be cured by early detection and appropriate treatment. If these cancers are detected early, the cost is less, treatment is less invasive, survival rates are higher and the quality of life is better. Therefore we believe that by creating awareness about these cancers and early detection through mammogram and other screenings is extremely important and is the only way to win the war on breast cancer.
When a child is born with a severe hearing loss, the impact on the parents and the problems facing the child are staggering. John Tracy Clinic is a place where parents of young deaf children can find hope, guidance and encouragement. Its purpose is to train and support parents in helping their young deaf children develop the communication skills necessary to reach their full potential. The Clinic was founded by Louise Tracy, wife of actor Spencer Tracy, whose son, John, was born deaf.
The Children's Brain Tumor Foundation is a non-profit organization founded in 1988 by dedicated parents, physicians and friends. Our mission is: to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
Vitamin Angels reduces child mortality worldwide by connecting essential micronutrients with infants and children under five. Essential nutrients, especially vitamin A, help young immune systems fight infectious diseases, helping children attain good health and the opportunity to lead meaningful and productive lives.
"To Integrate families and children of Autism back into society through LOVE and SUPPORT"
The CDC Foundation helps the Centers for Disease Control and Prevention (CDC) and the public health system save and improve lives by unleashing the power of partnerships to protect communities, everywhere.
RSRT was launched in 2008 to drive research toward a cure for Rett Syndrome and related MECP2 disorders. Our mission is urgent: 15,000 girls and women in the United States and 350,000 globally live with the agonizing symptoms of Rett Syndrome.
Our mission is to find a effective treatments and ultimately a cure for fragile X syndrome, the most common inherited cause of autism. We directly fund research grants and fellowships at top universities around the world. FRAXA was founded in 1994 by three parents of children with fragile X. Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. It affects 1 in 4000 boys and 1 in 6000 girls worldwide, and one in 260 women and 1 in 800 men are carriers. Treatments for fragile X are likely to help people affected by related disorders including autism, Alzheimers, and many other brain disorders.
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. In 1983, a small dedicated group of parents whose children had Rett syndrome formed the first non-profit to focus exclusively on Rett syndrome – International Rett Syndrome Association (IRSA). In 2007, IRSA and Rett Syndrome Research Foundation (RSRF) consolidated resources to better serve families and maximize research investments toward a cure. The International Rett Syndrome Foundation (IRSF) emerged with a mission to accelerate research and empower families that builds upon these foundations’ pioneering work toward care and cure. We are walking this journey with you. IRSF is comprised of parents and friends of those diagnosed with Rett syndrome. We are dedicated to empowering families with the latest medical information, offering meaningful support and resources, and advocating for all those living with Rett syndrome. Our strategy is simple but powerful: improve care today and create treatments for tomorrow. IRSF is committed to a full-spectrum approach, providing solutions for everyone living with Rett syndrome. We do this by investing in innovative research, working to build a robust treatment pipeline, and removing barriers to ensure clinical trial success.