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Our mission is to find a effective treatments and ultimately a cure for fragile X syndrome, the most common inherited cause of autism. We directly fund research grants and fellowships at top universities around the world. FRAXA was founded in 1994 by three parents of children with fragile X. Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. It affects 1 in 4000 boys and 1 in 6000 girls worldwide, and one in 260 women and 1 in 800 men are carriers. Treatments for fragile X are likely to help people affected by related disorders including autism, Alzheimers, and many other brain disorders.
AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance: Research. We promote and fund research toward diagnosis, treatment and a cure. Awareness. We stimulate greater public awareness and understanding. Support. We provide information and support to those directly impacted. Education. We promote and provide education for healthcare professionals. Advocacy. We advocate for research and appropriate, affordable services.
In the fight for a DIPG/DMG cure, we help patients and families by funding game-changing research and providing navigation throughout their journey.
To improve access to quality dental care and preventive health solutions for underserved and marginalized communities, including individuals with intellectual and developmental disabilities, seniors, and Medicaid populations. Through innovative partnerships, research, and strategic interventions, we strive to create equitable health outcomes, reduce barriers to care, and foster long-term well-being for all.