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The Kennedy's Disease Association's mission is to inform, support, educate, fund research and find a cure for Kennedy's Disease.

The Foundation focuses on curing Huntington's disease , not only because of its devastating consequences to individuals and families with the disease, but because it is a model for curing other brain disorders like Parkinson's, Alzheimer's and Lou Gehrig's (ALS) diseases. Today the Foundation continues to fund innovative research toward curing Huntington's disease and impacting other brain disorders.

Established in 1990, the Graves’ Disease Foundation is the leading source of help and hope for people with Graves’ disease, family members, caregivers, friends, and healthcare professionals.

Psoriatic Disease UK is the only collaborative patient-led organisation for psoriatic disease patients in the UK that focuses equally on psoriasis, psoriatic arthritis, and associated comorbidities.We recognise the wider burden of psoriatic disease and the vital role that caregivers play in managing it, which is why we don't limit our work to only those with the diagnosis.Supporting everyone impacted by psoriatic disease, we work boldly and creatively to meet patients where they are, providing peer support spaces, community, representation and awareness to improve patient outcomes and to educate the general public.We are Psoriatic Disease UK. Patient-led. Person-centred.

Bowel Disease UK was founded in 2007The charity has gone on to raise hundreds of thousands of pounds for medical research into Crohn's Disease, Ulcerative Colitis & Bowel Cancer at St George's Hospital in London and around the worldYour support is vital

Huntington's Disease Association England and Wales exists to support anyone who is affected by Huntington's disease. It pursues the best possible care; provides training and advice to families and professionals; raises awareness, and promotes research towards better treatment and care.

Norrie Disease is an incurable, ultra rare genetic condition causing mainly boys to be born blind or with severe visual impairment; many also develop progressive hearing loss during adolescence. NDF provides support to families affected by Norrie disease and funds novel research into the condition

The Danon Foundation boldly empowers people living with Danon Disease, providing trusted information, resources and support to help navigate life, from diagnosis to treatment.

Patients with chronic or life-altering diseases (such as cancer, rheumatoid arthritis, or multiple sclerosis) must fight both their illness and the financial burden it places on their family as they struggle to pay for their medications. It is estimated that over 35% of these patients have insurance but still cannot afford the co-payments for the specialty therapeutics they need to treat or control their disease, which can range from $300 to over $3000 per month for a single dose. These underinsured patients are not eligible for most free drug or patient assistance programs, leaving them with few alternatives. They may be forced to do without their medications or go into debt to obtain them, greatly affecting their health and quality of life. Our mission is to improve the health and quality of life of underinsured patients with chronic disease, cancer, or other life-altering conditions who cannot afford the medications they so desperately need.

We are a collaboration between parents, caregivers, clinicians, and research scientists. We want to transform the world of rare disease care to meet the needs of patients and their families. Our focus is the introduction of a new model of care that fosters innovative research. Health care agencies don't fund research and research agencies don't fund health care. This creates a problem when it comes to securing funding for work that can provide immediate benefits in treatment options. The Rare Disease Foundation fills the gap by providing funding to inspired clinicians and scientists for their patient-focused projects. Our goal is to support research that can directly impact the care and quality of life of a child with a rare disease. Grant requests are simplified to reduce red tape, vetted by both scientific and parent advisory panels, and funding decisions are made within 30 days of grant application to rapidly advance care solutions.

Cure Rare Disease forges collaborations with world-renowned researchers, clinicians and other stakeholders to develop a sustainable mechanism of customized therapeutics with unparalleled speed. We see the process being applied in a range of rare, genetic disorders that lack an effective treatment of cure.

To promote; Research. Education, and Advocacy regarding Lyme and other Tick borne disorders.