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Improving the lives of children with life-threatening and chronic skin disease! Our programs, Camp Wonder and Wonder Wish, empower kids with skin disease to look beyond their illness and experience a CHILDHOOD WITHOUT LIMITS!
Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public.
It is our mission to raise awareness of Addison's Disease and improve the lives of, educate and support people diagnosed with Addison's Disease and their families. Approximately 9,000 people in the UK have Addison's, with over 300 new cases diagnosed each year, yet very few have heard of it.
The Chronic Disease Research Foundation (CDRF), founded in May 1996, is an independent medical research charity.The CDRF funds a wide range of gene research programs that aim to discover the cause of chronic diseases such as long term COVID, cardiovascular disease, obesity, arthritis, dementia, back pain, and migraine. The CDRF runs many successful projects at the Department of Twin Research at St Thomas' Hospital. We hope that the results of this research will contribute to the development of future diagnostic tests and treatments.We rely entirely on non-governmental donations and grants to conduct our research.
"Our goal is to provide up-to-date and credible information, dispel myths and misconceptions, and serve as a resource for anyone with questions about Lyme disease and other tick-related illnesses."
A charity operating across the UK to reach and support all people affected by Pelvic Radiation Disease (PRD) following treatment for cancers, and to campaign for wider recognition and improved treatment in the NHS.
The Castleman Disease Collaborative Network’s (CDCN) mission is to accelerate CD research, treatment, and patient care through global collaboration, strategic investments in research, and supportive resources for patients and their loved ones.
HASAG provides support for sufferers and their families affected by asbestos-related disease, giving benefit and compensation advice.Signposting for better information, treatments and all round care of patients.Advocacy for patients and their families, monthly coffee mornings & counselling.
CRDN is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, and working together, we improve the journey towards better diagnosis, treatment and support for rare families.
ADRC provides free support, education, and life‑enrichment programs for people with Alzheimer’s disease and other dementias and for their caregivers across Long Island. The organization focuses on care consultations, support groups, community education, and therapeutic programs (art, music, equine therapy, memory cafés) to help families manage cognitive decline and improve quality of life.
Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.
The MND Foundation is committed be ensuring people and families living with MND are looked after from diagnosis to end of life through dedicated care hubs offering coordinated specialist care in one visit.It also funds vital research aimed at finding a cure for all those affected by MND.