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The Jack McGovern Coats' Disease Foundation raises awareness and funds for research to improve treatments and find a cure for Coats' Disease which is a rare eye disorder that can cause blindness and, sometimes, the loss of an eye. The blood vessels behind the retina leak fluid and can cause retinal detachment. There is currently no cure for Coats' Disease which afflicts children as young as 4 mos. old and treatments such as laser surgery do not restore sight. The Foundation's vision is to find a cure. Our mission is to serve as a resource for the Coats' Community. We have launched a patient registry for researchers; a doctor directory to locate knowledgeable specialists; and established the first National Tissue BioBank with the Wilmer Eye Institute to provide tissue samples for research.

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

CARD is a charity committed to educating the general public regarding the problems of Reflux disease. Patients consider heartburn as part of normal life, not realising that over time leads to serious consequences. We want to educate the general public and raise awareness of this common disease.

The chILD Foundation is a 501(c)(3) non-profit organization whose mission is to accelerate research to cure all forms of Children's Interstitial and Diffuse Lung Disease (chILD) and to provide compassionate support, education, and hope to children and families affected by these life-altering diseases.

To empower Sickle Cell Disease warriors and the community with knowledge, services and skills for self-sustenance in order to achieve community development & healthy living.

Founded in 1984, we're the UK charity for all affected by adrenal insufficiency, including Addison's disease. Every donation helps us raise awareness, improve adrenal crisis care and save lives. All donations go to our 'unrestricted' funds, to help us in this vital work.

The INPDA's mission is to relieve sickness and distress among families affected by NPD worldwide. We will achieve this by sharing knowledge across our network, providing mutual support between patient groups, improving information and awareness, and stimulating research.

We work collaboratively and in partnership with others to enable people who live or work with rare or hard to diagnose conditions to connect, advocate, educate and innovate to improve lives.

Our Vision: Every military-connected child is college, workforce, and life-ready.Our Mission: To support all military-connected children by educating, advocating, and collaborating to resolve education challenges associated with the military lifestyle.Our Goals:The enduring strategic goals that the Military Child Education Coalition seeks are:- Military-connected children's academic, social and emotional needs are recognized, supported and appropriate responses provided.- Parents, and other supporting adults, are empowered with the knowledge to ensure military-connected children are college, workforce and life ready.- A strong community of partners is committed to support an environment where military-connected children thrive.