Our Mission
KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state of the art research by bridging the gap between science and patient knowledge. The organization seeks to revolutionize the practice of medicine by identifying, optimizing, and implementing advances in the care and cure of globoid cell leukodystrophy, utilizing a multicenter network.
How Your Donations Help
- $25 helps KrabbeConnect send a newly diagnosed individual/family an informational package. Items included in the package include a notebook for writing down important medical details, a few pens, a couple of awareness bracelets, a small tote bag to carry necessary medical items, and vital resources to help navigate Krabbe disease. 1 Welcome Package
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Our Impact
Patients and families living with and/or caring for someone with Krabbe disease face enormous challenges. Out-of-pocket medical expenses, large deductibles, unpaid time away from work, supportive therapeutic interventions not covered by insurance, medical equipment, and monthly over-the-counter supplies are just a few of the many struggles that Krabbe families face on a daily basis. Through KrabbeConnect’s Patient Assistance Program, we hope to help ease some of your medical/financial burden so you can focus your time and energy on the most important thing….taking care of your loved one!