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The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders. We are a nonprofit organization, established in 1985 as the Ehlers-Danlos National Foundation by Nancy Hanna Rogowski (1957–1995) Our Vision We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD (Hypermobile Spectrum Disorders) population. Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope. Our Mission Collaborative research bringing together medical professionals from all over the world to work on groundbreaking management and care. Organizing medical and scientific symposiums to examine the latest research and update the diagnostic criteria and guidelines for management and care. Bringing together and uniting our community, providing annual conferences globally to distribute information and create opportunities to interact. Producing reliable up-to-date medical literature though our esteemed medical and scientific board and International Consortium on EDS and Related Disorders. Guiding both patients and medical professionals to the most up to date information, resources, support, and education. Uniting support groups and charities from around the world, providing resources and information where needed. Working with our Affiliates on local issues and projects that affect our communities around the globe. One person fighting is a start, but many together build an army. Giving HOPE to all those whose lives are affected by Ehlers-Danlos syndromes.

Called by God, Our Lady of Peace gently comforts and cares for those most in need near the end of their lives, wherever they call home, regardless of means.

The mission of the Foundation is the maintaining of a six bed hospice inpatient facility The facility has the capacity to provide approximately 1,460 to 2,190 patient days of hospice care annually. Assuming an average stay of 35 days, the facility would have the resources to accommodate 42 to 63 patients per annum at 100 percent of capacity.

AHRF funds early‑stage and innovative research into hearing and balance (inner ear) disorders and educates clinicians and the public about those conditions. The foundation’s work focuses on awarding seed grants to investigators, supporting studies on conditions such as Ménière’s disease and sudden hearing loss, and sharing information that advances understanding and treatment.

The Alzheimer’s Support Network exists to assist familiesdealing with Alzheimer’s disease and other neurocognitive disorders. Providing a compassionate and loving supportsystem for families is our prime purpose. As a network, we connect families with each other, localresources, and wider coalitions aimed at caring for caregivers and establishingthe best possible treatment for patients.  As navigators we guide families through allaspect of the disease process, including providing educational programs tofamilies and the community at large. Asadvocates, we strive to ease the burden of caregivers, enrich the lives ofpatients, and foster broader social awareness, respect and understanding ofthose with Alzheimer’s and their families.

OMRF was founded with the mission of helping Oklahomans and people everywhere live longer, healthier lives. That mission has remained our organization's compass, guiding our scientists not only to perform groundbreaking scientific research but to research that helps mankind in the battle against human disease. Our goal, quite simply, is to make discoveries that make a difference.

To provide wellness and healing related training and technical assistance to Indian tribes and organizations throughout the nation that is based in Native culture. " " - - - - - - - -

The Fogarty Center provides services and supports to children and adults with intellectual and developmental disabilities, helping people increase independence, build community connections, and make choices about their lives. Its programs include residential supports, day and employment services, children’s services, and self-direction/fiscal intermediary services.

Provide Patients and their Families with Advanced Illness Care of the Highest Quality.

The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases. Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies, and alliances with patient groups around the world is laying the foundation for breakthroughs that can improve the lives of millions who suffer from various “long haul” diseases.

Hospice Of Lake Cumberland Offers Compassionate Care To Patients And Families Struggling To Cope With A Life-Threatening Illness.

The Christopher and Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for individuals living with paralysis through grants, information and advocacy.