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The National Urea Cycle Disorders Foundation was founded in 1990 by a small group of parents of children affected by urea cycle disorders. Since 1990, NUCDF has grown to be the recognized leader in the fight to conquer urea cycle disorders. NUCDF's mission is dedicated to the identification, treatment and cure of these devastating disorders, affecting approximately 1:14,000 births and leading to developmental disability in children. NUCDF's goals are to stimulate and support medical research activities, raise awareness and educate medical personnel on the diagnosis and treatment of UCD, provide information and support to affected families, increase public awareness of existence of urea cycle disorders, and educate legislators on the needs of families affected by these rare disorders.
This database listing is not affiliated with or endorsed by National Urea Cycle Disorders Foundation. Donations to Pledgeling Foundation, a 501(c)(3) donor-advised fund, will be regranted to National Urea Cycle Disorders Foundation under the Terms of Service.
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