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Patients with chronic or life-altering diseases (such as cancer, rheumatoid arthritis, or multiple sclerosis) must fight both their illness and the financial burden it places on their family as they struggle to pay for their medications. It is estimated that over 35% of these patients have insurance but still cannot afford the co-payments for the specialty therapeutics they need to treat or control their disease, which can range from $300 to over $3000 per month for a single dose. These underinsured patients are not eligible for most free drug or patient assistance programs, leaving them with few alternatives. They may be forced to do without their medications or go into debt to obtain them, greatly affecting their health and quality of life. Our mission is to improve the health and quality of life of underinsured patients with chronic disease, cancer, or other life-altering conditions who cannot afford the medications they so desperately need.
LymeDisease.org is grounded in the principles of patient empowerment, participation, and self-determination. We fight to make the patient voice stronger to: - support science-based advocacy - bring about legislative change, and - create a future where Lyme patients can receive the treatments they need to get well. LymeDisease.org empowers individual patients by educating them, amplifying their collective voice, and providing research tools like our published big data surveys and the MyLymeData patient registry. We believe that there is strength in numbers.
Founded in 2000 by brothers Albert Rose and Michael Rosenzweig, PhD, the Pulmonary Fibrosis Foundation is a 501(c)(3) nonprofit organization dedicated to identifying effective PF treatments and assisting those living with the disease. The brothers experienced firsthand the devastating effects of PF when their sister claire passed away from the disease. Both brothers were also diagnosed with PF, and it was their vision and dedication that led to the creation of the foundation.
The mission of the Lung Cancer Research Foundation is to support national research studies and activities focused on developing innovative strategies for better treatments, screening, and prevention of all cancers of the lung. New knowledge gained by funding scientific and clinical research initiatives will lead to more positive outcomes and improved quality of life for all lung cancer patients.
Kyleigh’s Cure's mission is to help find a treatment, or cure for galactosemia. Galactosemia is an extremely rare disease in which too much galactose is produced in the blood. At this time, there is currently no cure, or treatment for galactosemia. The disease is so rare; there is minimal funding for research. Our fundraising efforts help the research continue, and give Kyleigh the opportunity of a normal life someday.
Our mission is a preferential option for the poor in health care. By establishing long-term relationships with sister organizations based in settings of poverty, Partners In Health strives to achieve two overarching goals: to bring benefits of modern medical science to those most in need of them and to serve as an antidote to despair. We draw on the resources of the world's leading medical and academic institutions and on the lived experience of the world's poorest and sickest communities. At its root, our mission is both medical and moral. It is based on solidarity, rather than charity alone. When our patients are ill and have no access to care, our team of health professionals, scholars, and activists will do whatever it takes to make them well- just as we would do if a member of our own families, or we ourselves, were ill.
National Breast Cancer Foundation's (NBCF) mission is to save lives through early detection and to provide mammograms for those in need.Our mission includes increasing awareness through education, providing diagnostic breast care services for those in need, and providing nurturing support services.
The Multiple Myeloma Research Foundation, Inc. mission is to: relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure. To achieve this purpose, four goals are pursued: Funding research in the field of multiple myeloma, building collaborations among researchers and industry, providing disease and treatment related information to patients and family members while advocating for optimal patient care, and raising awareness of multiple myeloma.
Dementia Society raises awareness and education across the United States and Canada for the syndrome known as Dementia (including Alzheimer's disease, Vascular Dementia, Lewy body, FTD, and other causes). We connect families to local resources; create meaningful therapeutic moments for those living with Dementia and their caregivers through non-medical programs that include music, movement, and the arts. We recognize and invest in outstanding Dementia care, innovation, and research.