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$1,795 raised via 30 donations
The mission of the Malan Syndrome Foundation is to improve the lives of individuals and families affected by Malan syndrome in the global community through support, outreach and research. Provide a broad network of support to families affected by Malan syndrome and help advance access to a diagnosis Promote knowledge development, awareness and sharing of information Explore research pathways to treatments and cures, as well as enhance understanding of Malan syndrome and related disorders
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