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METAvivor is dedicated to the specific fight of women and men living with stage 4 metastatic breast cancer. At the time of METAvivor’s founding, no organization was dedicated to funding research for the disease and no patient groups were speaking out about the dearth of stage 4 cancer research. While more and more people have taken up the cry for more stage 4 research, METAvivor remains the sole US organization dedicated to awarding annual stage 4 breast cancer research.
Promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for Polycystic Kidney Disease and improve the lives of all it affects... program supports PKD scientists and their research. The Foundation also provides scientific ... The Foundation raises awareness of PKD through national, regional ...
The Lupus Foundation of America (LFA) is the oldest and largest national nonprofit voluntary health organization focused on improving the quality of life for people with lupus. Our unique dual mission serves the ongoing needs of people affected by lupus today while leading efforts to find a cure – from care to cure! Through the national office in Washington, DC and a nationwide network of chapters, offices, support groups and community representatives, the LFA conducts programs of research, education, and advocacy. The LFA is leading efforts to bring national attention and resources to bear upon lupus in order to shine a light on this medically underserved disease, accelerate the pace of medical research on lupus, build support for the needs of those affected by lupus, and elevate lupus to a place of prominence on the nation’s health care agenda.
The Epilepsy Foundation is the national organization that works for people affected by seizures through research, education, advocacy and service. We are an organization of volunteers committed to the prevention and cure of epilepsy and a positive quality of life for everyone who lives with seizure disorders. Our current strategic goals include broadening and strengthening of research, providing individuals and families with easy access to reliable information, and assuring access to appropriate medical care for those affected by seizures.
NORD represents 1 in 10 Americans who have rare diseases with programs of advocacy, education, research and patients services. It serves as the voice of the rare disease community on important issues of public policy. It also provides information on rare diseases in understandable language for patients and their families, with referrals to support groups and other helpful resources. It encourages research on new diagnostics and treatments and administers patients assistance programs. NORD mentors rare disease support groups so that they can more effectively help their members. It serves as the point of connection between the patient community and key government agencies, such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Nearly 150 patient organizations are members of NORD and look to NORD for guidance, mentoring and leadership.
For more than 20 years, the Clinton Foundation has transformed philanthropy — running programs that develop leaders and accelerate solutions to the world’s most pressing challenges. Under the leadership of President Clinton, Secretary Clinton, and Chelsea Clinton, our unique approach prioritizes solutions over ideology — bringing people together in the spirit of collaboration and pragmatic problem-solving for a brighter future. Programs founded by the Clinton Foundation since its inception reflect our shared commitment to “putting people first” — the practice of focusing on how a proposed policy, program, or partnership can directly affect a person’s life and make a lasting impact.
To Ensure Individuals With Down Syndrome In Massachusetts Are Valued, Included, And Given The Opportunities To Pursue Fulfilling Lives By Providing Information, Networking Opportunities, And Advocacy For People With Down Syndrome And Their Families, Educators, Health Care Professionals, And The Community-At-Large
WALKSacramento works with transportation and land use planners, elected officials and community groups to create safe, walkable environments for all citizens and particularly for children, seniors, the disabled and low-income individuals. WALKSacramento works to incorporate pedestrian access into transportation and development decisions, to increase funding for pedestrian infrastructure, and to adopt and implement pedestrian master plans for local communities.