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The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. We do this through interactions and engagements with brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research.
“Maanavseva" (Service to Humans) is a Registered Non-Profit with a mission to fight malignancies including breast cancer among rural women in Indian villages. The mission is achieved through activities such as educating, creating awareness, conducting preventive examinations and mammogram screenings and facilitating the hand-holding of rural women with necessary follow-up and treatment.Maanavseva intends to implement this mission by adopting one village at a time and conducting 100% screening of all village women as per the health guidelines and implement follow-up on a sustained basis. The short term focus is to create a successful process for a cluster of villages that is replicable and sustainable. Maanavseva will achieve this goal through conducting pilot studies in villages, identify, resolve and document the challenges involved and arrive at a workable and sustainable model. The long term focus is to expand the model to several clusters of villages through sponsorship of corporations, local bodies and other Governmental Schemes. Most prevalent cancers for rural women can be cured by early detection and appropriate treatment. If these cancers are detected early, the cost is less, treatment is less invasive, survival rates are higher and the quality of life is better. Therefore we believe that by creating awareness about these cancers and early detection through mammogram and other screenings is extremely important and is the only way to win the war on breast cancer.
Prime of life neurodegeneration is a spectrum of relatively rare diseases that often afflict people during productive, active years and lead to debilitating symptoms and early death. They are generally categorized as frontotemporal disorders and are characterized by progressive personality, behavior, language and motor decline. These diseases create a level of functional impairment that significantly compromises the ability to carry out activities of daily living. There is currently no treatment and no cure, but there is hope. Research into these diseases may be a gateway to understanding and ultimately preventing, treating and curing more common neurodegenerative diseases like Alzheimer's and Parkinson's. CurePSP is the leading organization within this disease spectrum, providing support for patients, families and caregivers; awareness and education to healthcare professionals; and global research funding. Current research into prime of life diseases, especially progressive supranuclear palsy (PSP), is showing great promise for unlocking the secrets of neurodegeneration.
The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.
Their mission is to promote early detection of brain aneurysms by providing knowledge and raising awareness of the signs, symptoms and risk factors. Work with the medical communities to provide support networks for patients and families, as well as to further research that will improve patient outcomes and save lives.
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. In 1983, a small dedicated group of parents whose children had Rett syndrome formed the first non-profit to focus exclusively on Rett syndrome – International Rett Syndrome Association (IRSA). In 2007, IRSA and Rett Syndrome Research Foundation (RSRF) consolidated resources to better serve families and maximize research investments toward a cure. The International Rett Syndrome Foundation (IRSF) emerged with a mission to accelerate research and empower families that builds upon these foundations’ pioneering work toward care and cure. We are walking this journey with you. IRSF is comprised of parents and friends of those diagnosed with Rett syndrome. We are dedicated to empowering families with the latest medical information, offering meaningful support and resources, and advocating for all those living with Rett syndrome. Our strategy is simple but powerful: improve care today and create treatments for tomorrow. IRSF is committed to a full-spectrum approach, providing solutions for everyone living with Rett syndrome. We do this by investing in innovative research, working to build a robust treatment pipeline, and removing barriers to ensure clinical trial success.
The Fisher Center for Alzheimer's Research Foundation is a leading source of funding for Alzheimer's research. We actively raise funds to serve Alzheimer's patients and their families by seeking to understand the causes of, discover a cure for, and improve the lives of people with Alzheimer's disease. We primarily fund the work of Nobel Laureate Dr. Paul Greengard and his team of internationally renowned scientists to find a cure for Alzheimer's disease. They have made recent discoveries that hold great promise for the development of new drugs. We also support the research of Dr. Barry Reisberg at NYU's Medical Center. His 'Clinical Stages of Alzheimer's' is used by physicians around the world. The Foundation educates the public about Alzheimer's disease and care through its website, www. ALZinfo.org and magazine, Preserving Your Memory: the Magazine of Health and Hope. We have been awarded a 4-star rating from Charity Navigator eight times in twelve years, including this year. The Fisher Center for Alzheimer's Research Foundation overhead averages 8% for the last ten years.
Vitamin Angels reduces child mortality worldwide by connecting essential micronutrients with infants and children under five. Essential nutrients, especially vitamin A, help young immune systems fight infectious diseases, helping children attain good health and the opportunity to lead meaningful and productive lives.